Rare Disease Networks

In addition to the four core European Reference Networks which are part of the Solve-RD project (see Solve-RD associated ERNs) and the two associated  European Reference Networks the clinical-genetic network of Solve-RD also covers other rare disease networks and undiagnosed disease programmes. These networks bring in the relevant European clinical and research experts as well as unique cohorts.

Patient Organisations

Solve-RD is mainly collaborating with two patient organisations: EURORDIS - the voice of rare disease patients in Europe and Genetic Alliance.

Rare Disease Infrastructure

Solve-RD builds on the expertise of the most advanced and most useful diagnostic rare disease research infrastructure. We are collaborating with a number of networks, organisations, initiatives and projects.