Rare Disease Networks
In addition to the four core European Reference Networks which are part of the Solve-RD project (see Solve-RD associated ERNs) and the two associated European Reference Networks the clinical-genetic network of Solve-RD also covers other rare disease networks and undiagnosed disease programmes. These networks bring in the relevant European clinical and research experts as well as unique cohorts.
- TreatHSP: international network on HSP which started out as a German network with funding by the BMBF (Federal Ministry of Education and Research) but has since grown and is including more and more international partners.
- Spanish Undiagnosed Rare Diseases Program (SpainUDP)
- Telethon Undiagnosed Disease Programme (Telethon UDP)
The Group
Patient Organisations
Solve-RD is mainly collaborating with two patient organisations: EURORDIS - the voice of rare disease patients in Europe and Genetic Alliance.
Rare Disease Infrastructure
Solve-RD builds on the expertise of the most advanced and most useful diagnostic rare disease research infrastructure. We are collaborating with a number of networks, organisations, initiatives and projects.
