This work package will ensure professional strategic and operational coordination and management. It will also ensure public dissemination of Solve-RD’s research activities to the scientific community, the main stakeholders, ERNs, clinicians, patient organisations and the general public. Furthermore, this WP will make sure that the expected short-term and long-term impacts of the results from all work packages will be achieved mainly via bringing about utility for the ERNs. The engaged ERNs will greatly aid the promotion of the project’s content. The strong involvement of Solve-RD investigators with ERNs and RD infrastructure such as Orphanet and RD-Connect will also provide fertile ground for fostering links with further networks, research initiatives and international organisations.
Holm Graessner