Associated Networks/Partners

Network name Website Coordinated by
UDN Italy

Istituto Telethon di genetica e medicina (Tigem), Naples, Italy

EpiCare

https://epi-care.eu

UCL Institute of Child Health, Great Ormond Street Hospital, London, UK

MetabERN

http://metab.ern-net.eu

Centre for Rare Diseases, Helios Dr. Horst Schmidt Kliniken, Wiesbaden, Germany

ERKNET

https://www.erknet.org

Division of Pediatric Nephrology, Center for Pediatric and Adolescent Medicine, Heidelberg University Hospital, Heidelberg, Germany

Euroblood

https://www.eurobloodnet.eu

Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis, Paris, France

ERN-RITA

European Reference Network on Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases

http://rita.ern-net.eu

The Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK

ERN BOND

Medical Genetic Department, Rizzoli Orthopaedic Institute, Bologna, Italy

Spanish Undiagnosed Rare Diseases Program (SpainUDP)

http://www.spainudp.isciii.es

(not available yet; currently, it is a beta version)

Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III, Madrid, Spain