Associated Networks/Partners

In addition to four European Reference Networks which are part of the Solve-RD project (see Solve-RD collaborations) the clinical-genetic network of Solve-RD covers additionall associated ERNs, networks and undiagnosed disease programmes. These networks bring in the relevant European clinical and research experts as well as unique cohorts.

Network name Website Coordinated by
UDN Italy

Istituto Telethon di genetica e medicina (Tigem), Naples, Italy

EpiCare

https://epi-care.eu

UCL Institute of Child Health, Great Ormond Street Hospital, London, UK

MetabERN

http://metab.ern-net.eu

Centre for Rare Diseases, Helios Dr. Horst Schmidt Kliniken, Wiesbaden, Germany

ERKNET

https://www.erknet.org

Division of Pediatric Nephrology, Center for Pediatric and Adolescent Medicine, Heidelberg University Hospital, Heidelberg, Germany

Euroblood

https://www.eurobloodnet.eu

Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis, Paris, France

ERN-RITA

European Reference Network on Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases

http://rita.ern-net.eu

The Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK

ERN BOND

Medical Genetic Department, Rizzoli Orthopaedic Institute, Bologna, Italy

Spanish Undiagnosed Rare Diseases Program (SpainUDP)

http://www.spainudp.isciii.es

(not available yet; currently, it is a beta version)

Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III, Madrid, Spain